I have spent many nights in the last few months begging for God to spare my daughters life. We haver certainly received the miracle that we asked for. I don't know why, but it came in the form of a 5 pound 9 ounce bundle. This little girl is here for a reason... She is going to do something amazing. She is sleeping in my room at the hospital right now, and has been since Saturday night. She had about a 36 hour NICU stay. The shortness of it still takes my breath away. Her MRI found no connection between the mass on her head and her brain. Her heart was found to be normal by the Echocardiogram. Her kidney function is normal. Her chromosomes however were found to be missing precisely one "X".
Lily officially has Turner Syndrome and while I'm supposed to feel sad (at least that's what people are expecting from me) I am instead overjoyed by the fact that she made it from my womb into my arms and that after months of waiting we finally have our answer. I feel like I want to go out and have a party! After months of waiting we have a diagnosis and are ready to move on with our new life. She is a survivor and we are happy to add her to our family. She has some cosmetic surgery ahead of her and yet she is one of few Turner syndrome girls that does not have a major kidney or heart defect.
Initially we were told they still wanted to do surgery on the mass on her head and I just found out it's canceled... We'll follow up with a cosmetic/general surgeon in a couple of months!
I'm not sure how to process this all right other than to say that if you still don't believe in a God and the reality of miracles and the power of prayers then you haven't yet met my daughter! She is absolute proof of a loving, living God.
By the way... I posted a picture of dear little Lily on Twitter this afternoon. Follow me (@fatlittlelegs) to see it. I will post more photos here once I get home.
Lily officially has Turner Syndrome and while I'm supposed to feel sad (at least that's what people are expecting from me) I am instead overjoyed by the fact that she made it from my womb into my arms and that after months of waiting we finally have our answer. I feel like I want to go out and have a party! After months of waiting we have a diagnosis and are ready to move on with our new life. She is a survivor and we are happy to add her to our family. She has some cosmetic surgery ahead of her and yet she is one of few Turner syndrome girls that does not have a major kidney or heart defect.
Initially we were told they still wanted to do surgery on the mass on her head and I just found out it's canceled... We'll follow up with a cosmetic/general surgeon in a couple of months!
I'm not sure how to process this all right other than to say that if you still don't believe in a God and the reality of miracles and the power of prayers then you haven't yet met my daughter! She is absolute proof of a loving, living God.
By the way... I posted a picture of dear little Lily on Twitter this afternoon. Follow me (@fatlittlelegs) to see it. I will post more photos here once I get home.
